Home At Last

Anya is home at last! She was released around dinner time and slept for a couple hours once she was in her new bed. It is so good to have her here where she can relax and we can all be together.

We almost had to stay another night in the hospital because her blood pressure was creeping up through the afternoon. But the doctor decided to put her on high blood pressure medicine and to send us home with a blood pressure cuff & stethoscope. We have to take her blood pressure at least 3 times daily and report high readings to the doctor.

We will be going to the clinic on Friday for blood work and a check-up. If everything is good we will be able to return home. We hope to also find out the results of the bone marrow aspirate at that time.

Anya's hair is increasingly coming out. There were strands all over her, the pillow, and the bed today. So I have started looking for scarfs, caps, & turbans for her. According to websites it looks like she needs hats that are very soft, cover the entirety of her head, & won't fall off easily. I found a couple that I think she'd like:

http://www.headcovers.com/moreinfo.php?id=394 pastel pink and $12.99
http://www.hatsscarvesandmore.com/Merchant2/merchant.mvc?Screen=PROD&Store_Code=HSAM&Product_Code=u-petite3seam&Category_Code=Chats white and $18.00

We also could really use a lamp for her room. She doesn't like bright lights even during the day but especially during the middle of the night I need a soft light to change diapers, give meds, etc. I found one at Target http://www.target.com/gp/detail.html/sr=1-1/qid=1183517107/ref=sr_1_1/601-8556162-0652148?ie=UTF8&asin=B0007G6OE8.

We appreciate those who have encouraged us to share our needs; we feel your support.